A grieving mother who lost her 12-year-old son to a brain tumour was devastated to discover his twin brother had leukaemia just two weeks after his funeral.
Julie Parton’s son Ben was diagnosed with an aggressive brain tumour, which has a prognosis of around 15 months, in March last year.
Despite undergoing 30 sessions of radiotherapy and two cycles of chemotherapy and having brain surgery, Ben, from Cannock in the West Midlands, died eight months later in December 2019.
Shortly after Ben’s death, his identical twin brother Jack began suffering from back pain and sickness.
His symptoms were initially put down to post traumatic stress disorder after the trauma of losing his brother.
But a fortnight after Ben’s funeral, Jack was diagnosed with leukaemia, according to the Birmingham Mail.
Grieving mother Julie Parton, 51, from Cannock in the West Midlands, lost her son Ben (left, in hospital after brain surgery) to an aggressive brain tumour in December last year. Two weeks after his funeral, his twin brother Jack (right photo, left, with his brother and mother) was diagnosed with leukaemia
Their mother, 51, described the past eighteen months as ‘horrendous’ but said it was a ‘relief’ to discover Jack has leukemia rather than a brain tumour.
‘It’s almost impossible to put into words how horrendous this has been,’ she said.
‘Having gone through everything with Ben, and just as we were grieving his loss, it was a hammer blow to find out only two weeks after his funeral that Jack was also fighting cancer.
‘Although it seems wrong to say this, it was a relief to discover that Jack had leukaemia rather than brain cancer.
‘It is some consolation that with Jack I can dare to feel there is more hope.’
Ben (left) was diagnosed with an aggressive brain tumour, which has a prognosis of around 15 months, in March last year and died in December
Shortly after Ben’s death, Jack began suffering from back pain and sickness. His symptoms were initially put down to post traumatic stress disorder after the trauma of losing his brother. But a fortnight after Ben’s funeral, Jack was diagnosed with leukaemia
WHAT IS A GLIOBLASTOMA?
Glioblastomas are the most common cancerous brain tumours in adults.
They are fast growing and likely to spread.
Glioblastomas’ cause is unknown but may be related to a sufferer’s genes if mutations result in cells growing uncontrollably, forming a tumour.
Treatment is usually surgery to remove as much of the tumour as possible, followed by a combination of radio- and chemotherapy (chemoradiation).
It can be difficult to remove all of the growth as glioblastomas have tendrils that extend to other regions of the brain. These are targeted via chemoradiation.
Glioblastomas are often resistant to treatment as they are usually made up of different types of cells. Therefore, medication will kill off some cells and not others.
The average survival time is between 12 and 18 months.
Only 20 per cent of patients live longer than a year and just three per cent survive over three years.
Source: The Brain Tumour Charity
Julie said that although she has been ‘too scared’ to ask for Jack’s prognosis, she knows a leukaemia diagnosis is no longer the ‘death sentence’ it used to be.
But in contrast, she said Ben ‘never really stood a chance.’
Ben and Jack, although identical and ‘alike in many ways’ were also very different, Julie said.
The type of tumour which Ben suffered from, glioblastoma multiforme, is the same which took the life of former Labour minister Tessa Jowell.
The disease is the most common form of brain tumour in adults but only 20 per cent of patients live longer than a year and just three per cent survive over three years.
Fortunately, Jack, whose leukaemia diagnosis came in January, was this summer told he is cancer-free after undergoing chemotherapy treatment at Birmingham Children’s Hospital.
However, he will need to continue to have chemotherapy for the next two-and-a-half years to reduce the chances of the cancer coming back.
Julie said that her son is coping well with his treatment but that some days are very difficult for him.
She said he misses his brother ‘so much’ and would likely ‘give anything’ for them to play on their PlayStation together.
The mother is now campaigning with the charity Brain Tumour Research in memory of Ben.
She wants research funding to be increased to £35million a year to bring it level with funding into other cancers such as breast, prostate and leukaemia.
She said that whilst brain tumours kill more children and adults under the age of 40 than any other cancer, only one per cent of cancer research spending goes into looking at them.
The devastated mother added that families like hers have ‘no hope’ without investment into more research.
WHAT IS LEUKAEMIA?
Leukaemia is a cancer that starts in blood-forming tissue, usually the bone marrow.
It leads to the over-production of abnormal white blood cells, which fight off infections.
But a higher number of white blood cells means there is ‘less room’ for other cells, including red blood cells – which transport oxygen around the body – and platelets – which cause blood to clot when the skin is cut.
There are many different types of leukaemia, which are defined according to the immune cells they affect and how the disease progresses.
For all types combined, 9,900 people in the UK were diagnosed with leukaemia in 2015, Cancer Research UK statistics reveal.
And in the US, around 60,300 people were told they had the disease last year, according to the National Cancer Institute.
Most cases have no obvious cause, with the cancer not being contagious or inherited.
Leukaemia generally becomes more common with age – the exception being acute lymphoblastic leukemia, which peaks in children.
Other risk factors include being male, exposed to certain chemicals or radiation, and some bone-marrow disorders.
Symptoms are generally vague and get worse over time.
These can include:
- Frequent infections
- Heavy periods, nose bleeds or bleeding gums
- Shortness of breath
Acute leukaemia – which progresses rapidly and aggressively – is often curable via chemo, radiotherapy or a stem cell transplant.
Chronic forms of the disease – which typically progress slowly – tend to incurable, however, these patients can often live with the disease.
Source: Leukaemia Care